Please note that the Radio4All website will be moving over to new server hardware on August 2nd starting at 10 AM Pacific/1PM Eastern. The work should last two to three hours. During that time, the server will be offline.
Welcome to the new Radio4all website! If you cannot log in, you may need to reset your password. Email here if you need additional support.
Your support is essential if the service is to continue, there are bandwidth bills to pay every month and failing disk drives to replace. Volunteers do the work, but disk drives and bandwidth are not free. We encourage you to contribute financially, even a dollar helps. Click here to donate.Welcome to the new Radio4all website! If you cannot log in, you may need to reset your password. Email here if you need additional support.
This week we spoke with Mary Ellyn Parker about living with a rare medical condition called Hereditary Hemorrhagic Telangiectasia. She worked as a nurse in the Niagara Region for over 30 years and in 2001 she was diagnosed with HHT. She spoke about the challenges of finding a diagnosis for her symptoms and the experiences of switching from being someone who is used to giving care to now having to depend on others. A critical message that Mary Ellyn spoke about is the importance of physicians listening to patients and really hearing what they have to say.
To understand more about Hereditary Hemorrhagic Telangiectasia go to Hereditary Hemorrhagic Telangiectasia Foundation International.
If you would like to contact Mary Ellyn you can reach her at mellyn1@hotmail.com.
This program originally aired on CFMU 93.3 FM. Check us out online at http://www.healthjusticeradio.com